One afternoon in late November, my husband and I were sitting in an exam room waiting for the neurologist to return. Fred had already had an extensive neurological exam and, sitting there in silence, I could see the worry and fear on my husband’s face.
Eighteen months earlier he had started having muscle twitches in his arms and chest, but the neurologist at the time couldn’t find anything else wrong and diagnosed him with “benign muscle fasciculations.” Likely temporary, minor muscle twitches — nothing to worry about.
Now Fred was having problems enunciating words. Whatever was wrong must be serious. As I watched the neurological exam, I could tell that my formerly strong husband was having significant problems with his arms, hands, and tongue. What could be going on?
It took about 15 minutes before the neurologist returned, this time with another neurologist who started doing more neurological testing. After about 10 minutes they both sat down and the...